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美国“双脸男孩”过13岁生日 曾被诊断存活几率为0

2017-06-10 11:50:41   

原标题:美国“双脸男孩”过13岁生日 母亲称:多活一天都是福气

密苏里州“双脸男孩”强森(Tres Johnson),患有罕见的“先天性脸部畸形”(Craniofacial Duplication),他出生时被医生诊断存活机率为0,但还是坚强地与父母对抗病魔,对他来说,多活的每一天都是福气,如今成功欢度13岁生日。

根据《每日邮报》报道,住在伯尼市(Bernie)的强森脸部严重畸形,并导致他认知迟缓,每天癫痫发作多达400次,用大麻油治疗后降至每天40次。“先天性脸部畸形”的症状是部分五官及脸部结构被复制,头部较宽大,全世界只有36例被记录在案。

报道指出,强森出生时,尽管被医生认为存活机率为0,但是他的母亲布兰蒂与父亲乔叔亚成功地把不可能变为可能。他这几年来接受多次手术,修补脸上裂缝,改变头颅形状,减轻脑部所受的压力。

报道提及,全职在家照顾他的母亲布兰蒂表示:“他能活到13岁简直令人难以相信,只要多活一天就是福气。”先前有许多陌生人得知强森情况后,都指责母亲让儿子活着是个“自私的决定”,甚至有人认为应该让“双脸男孩”安乐死,但是对她与家人来说,儿子是上帝送来的礼物,“我只想让孩子知道我们有多爱他,我们永远不会因为儿子的样貌感到羞愧。”

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