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重病学霸戴氧气机考入衡水中学 考试结束进ICU

2016-07-14 07:04:23   京华网

孙硕近况

孙硕的录取通知书

孙硕的诊断证明

今年6月初,河北衡水市的孙硕再次复发慢性肉芽肿。为不耽误中考,他没有接受系统治疗,戴着氧气机完成了中考,以580多分被衡水中学录取。中考一结束他就住进了北京协和医院ICU病房,被查出并发肺动脉高压,病情危重。孙硕从3个月大时就被确诊为慢性肉芽肿,15年来不断和病魔作斗争,家庭已不堪重负。目前,家人筹集到的14多万元社会善款只够维系孙硕一个月的治疗。

中学生戴着氧气机完成中考后进入ICU

孙硕的母亲王女士对前街一号(微信号:qianjieyihao)记者说,今年6月初,河北衡水市的孙硕再次复发慢性肉芽肿,这是他第四次发病。复发慢性肉芽肿是一种遗传性疾病,在孙硕的身体上主要临床表现为真菌性肺炎,他的肺部做过切除手术,呼吸频率是正常人的两到三倍。由于每次系统治疗都至少需要两个月的时间。为了不耽误中考,孙硕选择了暂时不治疗。家里给他购买了一台氧气机,供他缓解肺部供氧不足。

王女士说,6月21日,和考场管理方协商后,孙硕的父亲背着他,戴着氧气机进入他一个人的考场。由于在中考之前,孙硕突然发烧,他还带着退烧药和热水,在考试开始前服用,缓解发烧带来的头晕、头痛等症状。最终,孙硕坚持完成了两天的中考,中考成绩580多分,7月6日被衡水中学录取。

王女士说,6月24日,病情危重的孙硕住进了北京协和医院ICU病房。经过检查,孙硕被发现慢性肉芽肿引发了肺动脉高压,治疗期需要三个月到一年的时间。

前街一号(微信号:qianjieyihao)记者了解到,7月13号下午4点左右,王女士进入ICU病房看望孙硕。“孩子的情绪有些不稳,上周做的支气管镜手术老让孩子做噩梦”。当日值班的管房医生表示,孙硕病情相对稳定,出现幻觉等症状属于正常情况内,撤掉呼吸机后仍需继续观察。主治大夫张医生表示,孙硕目前的确患有肺动脉高压,系肺部感染引起的。

王女士说,由于要照顾孙硕和他5岁的弟弟,自己已经辞职在家做全职妈妈,全家只能依靠丈夫一个人的收入。而丈夫的单位今年来效益不佳,一天只有90元的收入,无法负担孩子高昂的医药费。目前,王女士已经从社会上募集了14万多元的善款,而孙硕每天在ICU病房至少要花费5000元左右。因此,这些钱也只够维持孙硕大概治疗一个月左右。王女士希望有更多的爱心人士伸出援手,帮助孙硕战胜病魔。

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