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男生带奶奶和10岁妹妹上大学 亲人都因罕见病去世
2017-09-14 05:11:20 中国青年网
华显珍有三个子女,随着两个儿子的相继离世,今年2月份,华显珍的小女儿也离开了她,留下了一个10岁的孙女。在这之前,华显珍认识了一个叫李冰冰的志愿者,她和华显珍讲述了遗体捐献的好处,眼角膜能救人,器官能做医学研究。2012年,华显珍捐献了儿子的遗体。2014年,华显珍和女儿去齐齐哈尔医学院祭奠儿子的时候,她和女儿都签订了遗体捐献书。女儿去世后,华显珍就把女儿的遗体捐献了。
现如今在华显珍的身边,只剩下孙子孙晓宇和外孙女董华佳。华显珍说现在最让她开心的事就是,孙子上大学了,而且经过检查,孙晓宇是健康的。而小外孙女一直没敢做检查,华显珍说,一是检查费用太高,另外一点是她怕,怕一旦小外孙女有同样的病,她承受不了这样的打击。如今她只想陪着两个孩子过好每一天。了解了孙晓宇的家庭状况,学校决定免除孙晓宇在校期间的学费和杂费费用,餐补方面享受学校老师的标准。
在华显珍老人的亲属里,只要是跟华显珍公公有血缘关系的,除了孙晓宇,和没接受检查的外孙女董华佳,都患有亨廷顿舞蹈症。到目前为止,家里已经有八名患有亨廷顿舞蹈症的患者,现在只有华显珍丈夫妹妹的孩子还活着,也签了遗体捐献书。华显珍希望通过这些捐献,医学界可以尽早地研究出治疗亨廷顿舞蹈症的药物。
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