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只要有一线希望就决不放弃:中国红基会救助新疆复杂先心病患儿苏比努尔

2017-09-15 09:21:41   央广网

“我是苏比努尔的父亲,我们的孩子已经在您们的帮助下到北京医院入院接受治疗了。孩子的病越来越重,我们又无力支付高昂的治疗费用,是你们给了我们孩子新的生命,我远在家乡的父母听说孙女有机会做手术都激动地哭了,您们是我们的恩人,感谢您们伸出的仁爱之手!”这是新疆复杂先心病患儿苏比努尔的父亲伊马伊丁8月27日给中国红基会打来的电话。

苏比努尔入院接受治疗。摄影:付春来

家住和田市和田县的患儿苏比努尔,出生5个月时被诊断出患有先天性复杂心脏病,当时因不具备手术条件未进行手术治疗,之后就经常发热、呼吸困难,经常要到医院进行退热等治疗,21个月大,体重只有9公斤,嘴唇和手指都发紫。苏比努尔的父亲是县派出所工作人员,母亲在家照顾她和9个月大的弟弟,一边是微薄的收入无力支付高额的治疗费用,一边是孩子病情越来越严重,令这对年轻的夫妇过着终日无比忧心的日子。

今年6月份苏比努尔的父母抱着一线希望带着孩子参加了中国红基会在新疆开展的天使之旅“一带一路”人道救助计划先心病患儿的筛查,之后苏比努儿被安排到当地医院接受检查,由于手术风险大,医疗费用高,当地医院不建议手术。想到女儿还要继续接受疾病的折磨,父母怀着焦急而绝望的心情来到自治区红会寻求进一步的帮助。红基会项目人员接到求助电话后,本着尊重每一个生命,只要有一线希望就决不放弃的理念,立刻联系北京安贞医院的心血管专家进行诊断,初步形成可通过做分流手术改善生活质量的治疗方案。由于手术费用高出一般的先心病治疗费用,同时也第一时间就此特殊病例与本次活动的资助方之一艾默生电气(中国)有限公司进行了沟通,捐方当即表示愿意为该患儿承担本次手术的全部治疗费用。

中国红基会和捐方代表探望术后正在康复的苏比努尔。摄影:付春来

8月28日苏比努尔入院北京安贞医院,医院对其进行了细致检查,并制定了治疗方案,9月6日由国内知名心血管专家苏俊武主任亲自主刀进行手术,术后经过一周的重症监护,于9月12日转到普通病房,手术取得预期的效果。

9月15日上午,艾默生电人员气(中国)有限公司代表在红基会项目人员的陪同下来到医院探望术后正在康复的小苏比努尔。艾默生企业代表给苏比努尔带来了玩具和营养品等礼物,同时还向苏比努尔的父母转交了公司员工捐赠的善款4000元,鼓励他们勇敢面对疾病,安心接受治疗,祝愿小苏比努尔早日恢复健康、快乐成长。苏比努尔的父母怀着无比感恩之情给红基会和爱心企业送上感谢牌。

天使之旅“一带一路”人道救助计划新疆先心病患儿筛查救助活动自6月25日安排首批患儿入院手术治疗起,已陆续安排患儿到北京、无锡、上海、乌鲁木齐、喀什和和田等地的医院接受治疗,截止目前已累计救助喀什、和田、伊犁地区患儿106名,其中无锡明慈心脏病救助基金会资助62名,艾默生电气(中国)有限公司资助30名,支付宝公益平台筹款资助14名。

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