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4岁女孩患病“逆生长” 母亲拒捐款开网店照顾女儿

2017-05-14 17:01:17   华西都市报

今年9月8日,深圳5岁女孩罗一笑被查出白血病,她父亲罗尔开始在微信公众号上记录一家人与白血病“战斗”的历程。随着越来越多人的关注和捐款,该事件也被一些人认为是一次营销、“骗捐”行为。通过媒体报道,利用网络、爱心人士善心大肆骗捐的更是大有人在。

而在绵阳市秀水镇,有这样一位母亲,在4岁女儿初诊为RETT(雷特)综合征的情况下,担心女儿无法回报社会,她没有接受社会爱心人士的一分善款,想通过家人努力来完成与病魔的抗争,给女儿一份好生活。

面对女儿基本无法活过40岁的命运,作为母亲,她愿意与女儿一起离开。

异于常人4岁小女孩逆生长

杨小兰的家位于绵阳市秀水镇石马村,离镇上约3公里。12日一大早,杨小兰和堂弟从崇州出发赶回老家,还有两天就是母亲节,已为人母的她,要赶回家看望母亲和患病女儿。

12日下午3点多,秀水镇烈日炎炎,虽未入夏,人们已能感觉到一丝燥意。见到杨小兰时,她正在家中,女儿葶尚依偎着她,双臂、手指交叉在一起。看见有陌生人来,不会讲话的葶尚显得有些焦虑,发出“呜、呜”声响。杨小兰一边哄着女儿,一边给记者讲诉了近年来的经历。

2013年1月,杨小兰和现任丈夫结婚。两人都是再婚,各自也有孩子,夫妻俩商量后,依然决定再生一个孩子。当时两人并未想到,这个决定会改变这个家庭的命运。

“怀孕后大概6个月,就出现了缺氧情况,考虑到孕前孕后检查大人身体都没异常,还是决定把孩子生下来。”杨小兰说,两个多月后,剖腹产生下女儿,取名“葶尚”,意为亭亭玉立、品德高尚。

在葶尚10个月大时,杨小兰发现小女儿和同村同时期的小孩不一样。“总感觉她的反映要慢半拍,动作也僵硬,相较同龄的小孩子,明显发育要慢一些。”杨小兰说,再对比自己大女儿当时的发育情况,她发现孩子身体可能出现了问题,就立即把孩子送到医院检查。

杨小兰回忆说,当时经过医院初步诊断,葶尚的症状属于神经线发育迟缓,并不能根治,只能通过康复治疗慢慢疗养。

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