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自己患尘肺病16岁女儿患“血液病” 男子为医疗费发愁

2017-05-28 05:11:19   

“但愿是继发。”洛南高耀镇王岭村46岁的孙师傅祈祷着。他16岁的女儿刚被确诊为噬血细胞综合征,他希望女儿得的是治愈率稍高的继发型,这样他好有盼头。

女儿突发高烧辗转多家医院才初步确诊

昨日上午10时许,华商报记者在唐都医院血液科见到孙师傅时,他正陪女儿准备检查。陪同的孙师傅哥哥说:“弟媳8年前得病去世,弟弟和女儿相依为命,要是女儿没了,他怕也活不下去了。其实我们兄弟俩都几乎是 废人 了。我们都是尘肺病患者,上个二楼就得歇一歇,不然喘不过气,更别说打工、干农活了。”

据了解,5月初,孙师傅的女儿突然高烧40 ,村、镇、县上的医院都看遍了,也退不了烧。后来转院到唐都医院,先在传染科,26日送到血液科,被初步诊断为“噬血细胞综合征”。

怕影响治疗没敢让女儿知道她的病情

昨日,华商报记者提出想见见孙师傅的女儿时,他坚决地说:“不行,我还没让娃知道她的病情。”

孙师傅说,刚住进唐都医院时,退了高烧,女儿还有些兴奋。但这几日连续的抽血、化验,让女儿非常不安,总是向亲戚们打听她到底得了什么病。“我把她的手机都没收了。我不知道这样做对不对,但我怕娃知道后,受打击。”孙师傅靠在病房外的栏杆上,茫然地看着走廊一头,半晌才说:“其实,我这女儿是收养的。3年前,她得知自己是收养时,大闹一阵。饭也不吃、觉也不睡。这女子性子烈,我怕她知道病情后,又干出傻事。”

主治医生熊医生称,孙师傅的女儿尚未被确诊是原发还是继发噬血细胞综合征,“如果是原发死亡率很高,如果是继发,先确认是哪里感染,再确定治疗方案。”

靠补助过活 女儿是后半生的指望

1989年,16岁的孙师傅和哥哥,还有众多洛南县高耀镇的年轻小伙下矿挣钱。洛南、黄龙等地的矿,他们都去过。

“那时没听说过尘肺病,下矿干活没有防护。直到1999年,知道尘肺病时,我已有轻微状况了。但因爱人有糖尿病,我必须继续下矿挣钱,直到2009年爱人因糖尿病过世,我2010年也彻底干不动了。”对于往事,孙师傅不愿多提。

在他提供的一张“商洛市疾病预防控制中心职业病诊断证明书”上,记者看到“矽肺叁期”的诊断。记者问他平日吃药花销大吗,他说尘肺病治不好,吃药没用还花钱。

“现在我浑身没劲儿,啥活儿也干不了,靠着国家那不多的尘肺病补助过活,有时甚至要靠父母的高龄补贴。女儿是我后半生的指望,她要是万一走了.……”还没把话说完,孙师傅的眼睛就红了。

据了解,四处筹来的10万元医疗费已差不多花完,后续的医疗费也让孙师傅一筹莫展。

原标题:自己患尘肺病16岁女儿患"血液病" 男子为医疗费发愁

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