新闻 > 社会
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China

肌无力男孩坐轮椅求学12年 爸妈就是他的腿

2017-05-10 05:56:15   

校园里,妈妈推着陈一沛去上课。

在山西工商学院校园里,总能看到这样一幕:一位身材瘦削的中年女士推着一个坐在轮椅上笑容满面的男孩。坐轮椅的男孩叫陈一沛,被同学们称为“微笑天使”,推轮椅的是他妈妈丁瑞兰。

陈一沛小时候患上了进行性肌营养不良症(俗称“肌无力”),只能坐在轮椅上度日,他的爸爸妈妈为了让他跟普通孩子一样,毅然承担起陪护的责任,从小学一直背着、推着进入大学,日复一日,年复一年。

求学之路如此艰难,他们是怎么坚持下来的?5日上午,记者来到山西工商学院,见到了这对乐观向上的母子,厄运降临到他们头上,他们没有被打垮,反而笑脸相对,再三说要感谢帮助过他们的所有人。

“一谢学校,二谢父母”

陈一沛1994年出生,今年大三。母亲丁瑞兰今年53岁,曾在一家企业当会计,父亲是公务员,三口之家的小日子本来过得挺幸福,然而陈一沛的病打乱了这个家庭原有的节奏。

“一沛1岁3个月学会走路时,我们就发现他脚板外撇,再大一点发现他走路比别的小孩慢,还经常摔跤。上幼儿园一次体检查出转氨酶高,在省儿童医院进一步诊断,被确诊为进行性肌营养不良症,到四年级时就完全站不起来了。”丁瑞兰告诉记者,进行性的意思就是病情会越来越严重,刚开始是下肢不能动,慢慢地,上肢也出现了乏力的症状。

一沛在轮椅上坐着,脚板重重地搭在脚搭上,手腕抬不起来,看着妈妈诉说病情时愁苦的表情,自嘲道“可能是DNA有点问题”,说完咧嘴笑了。

这样的身体情况,求学的艰难可想而知。一沛的妈妈清楚地记得,一沛6岁半上了一年级,学校以班里孩子多,一沛腿脚不灵便怕有闪失为由,要求家长把孩子领回去。“我们给人家保证,出了任何问题责任自负。即便这样,学校态度还是很坚决,甚至把他的课桌搬到教室最前面对着门。那几天一沛回了家不是偷偷抹眼泪,就是大声吼叫,为什么这样对我!僵持了十多天,我们最终妥协了,把孩子送回幼儿园大班。”回忆起这段日子,丁瑞兰很心酸,眼泪顺着脸颊流,说“太崩溃了。”

对待一沛,丁瑞兰和丈夫本着一个原则,不把他当病人,而是当生了病的普通孩子。丁瑞兰举了个例子,比如他痒痒,拿起他的胳膊让他自己挠,这对他来说也是锻炼。

上一页1/3下一页
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China

相关阅读

404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
分享到:
0 0
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China

美图推荐

404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China

为您推荐

加载更多>>
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China
404 Not Found

404 Not Found

Sorry for the inconvenience.
Please report this message and include the following information to us.
Thank you very much!

URL: http://3g.china.com:8080/act/news/1007/20170510/30506223.html
Server: cms-8-251
Date: 2024/12/26 04:10:11

Powered by China
China