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14岁患病少女面若大妈腹如孕妇 医护人员发动众筹

2016-12-30 17:06:48   中安在线

(原标题:14岁患病少女面若大妈腹如孕妇医护人员为她发动众筹)

在滨湖医院烧伤整形科的病床上,14岁的倩倩有一张40岁的面庞和高高隆起的肚子。只有当她开口说话时,那依旧稚气的嗓音,才能让人相信,她真的只是名14岁的花季少女。

冬日的暖阳,懒懒地洒在病房的窗沿上。趴在病床上的倩倩心里也是暖暖的。陪伴多日的医生护士通过微信,四天之内为她募捐到5万元医疗费,不但解决了她的燃眉之急,还可以留下一部分钱供后续治疗。

滨湖医院的医护人员为倩倩筹措的“轻松筹”

花样少女与病魔的8年斗争

14岁,本该是花一般的年龄,但是倩倩,却已经与病魔斗争了8年。她身患系统性红斑狼疮、狼疮性肾炎、急性横贯性脊髓炎、四期压疮……

倩倩来自定远县蒋集镇的一个农村。六岁那年,倩倩即将上小学,却在体检中被发现其尿检的蛋白量很高。

父母带着她到合肥、南京四处求医,最终倩倩被确诊为系统性红斑狼疮、狼疮性肾炎。

此后,倩倩开始了痛苦的求医模式。在此后的八年时间里,她有一大半的时间在医院里度过。她的腿部行动能力也越来越差,长期应用激素,她还出现了向心性肥胖及满月脸,容貌严重改变,颜面像40岁的中年妇女,肚子大如孕妇。

噩运并没有止步。2014年2月,倩倩不幸罹患急性横贯性脊髓炎,虽经南京市儿童医院抢救脱离了生命危险,但自此高位截瘫,不得不告别校园。

长年累月地坐在轮椅上,加上家人对医疗知识的缺乏,今年11月1日,倩倩被送到了滨湖医院就诊。她的骶尾部破溃深达骨膜,发展为四期压疮,破损处令人触目惊心。

绝症女儿心疼家人欲放弃治疗

滨湖医院烧伤整形科主任王少根清晰地记得,倩倩因压疮感染导致狼疮进入活动期,大量蛋白尿继发低蛋白血症及全身水肿,且长期激素治疗,导致其免疫力低下、组织修复力弱,治疗难度非常大。

而对于倩倩一家人来说,这八年的奔波和治疗,已经耗费了家里所有的积蓄,还导致债台高筑。这次倩倩前来住院,是倩倩的爸爸四处央求,好不容易凑到了两万元。

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